Respite Workers

I've emphasized multiple times how important it is for caregivers to get a break from their duties. You're always more effective when you are rested. And let's face it, your loved one could probably use a break from you as much as you need one from them!

So, once you've decided to get away, how can you know your loved one is getting the care they need while you're gone? One of my fellow caregivers has a fantastic idea that I'm passing on to you!

Start with two things: a binder (1" or so should do it), and a journal of some sort (maybe an essay book like the college kids use for testing). For the journal, whatever you like to write in works, however I would encourage you to get something with lines pre-printed. If you're a bit OCD like me, you'll want to get a binder and journal that match. Or, perhaps your loved one will want to help you decorate the journal; those with dementia usually like doing projects!

In the binder, put everything the respite worker will need, to tend to your loved one. For instance, I have an Emergency Information Sheet and Liability Waiver (see Caregiver Info at right), a layout of the daily routine, In-depth medication list with side effects and expectations, directions for Heimlich Maneuver and  CPR, Bedtime routine, loved one's likes and dislikes, what agitates or soothes your loved one, bathing and toileting helps and schedules, etc. You can put dividers in to make things easier to access, but it isn't necessary unless you've got a great deal of information.

A fold-back binder

The nice thing about the binder is the caregiver can add things as new issues come up, or take away things when changes occur. That will insure instruction is always up-to-date for the respite worker. And if you get one of those cool binders where the bottom folds back it can stand up on the counter so the respite worker can get a good look while working.

A good-sized journal, easy too write in

The journal is for the respite worker to write anything that goes on during the day. For instance, if the loved one had to be on oxygen for 1/2 an hour during the day that should be recorded in the journal, noting time, date and duration. If the caregiver starts keeping this journal now it will be easier for the respite worker to see what the routine has been and whether or not the loved one has veered off the routine. When the caregiver returns from the break (whether it's a couple hours or a couple of days) they will know exactly what took place in their absence.

This system is a winner from all viewpoints! The loved one can be assured they will get consistent care, the respite worker will know exactly what is expected, and the caregiver will be able to rest completely while they're away!

My binder is packed full and I'm always adding and subtraction medication information and routine info. It's very helpful when it's complete!