We had three days in a row of parties and that took its toll on us both. We sure aren't the party-ers we used to be. Well, actually, we have never really been party animals, but still. You would think we could handle a few days of "Christmas" without wanting to sleep for the next two weeks. :)
Some things we've learned about Parkinson's and parties:
1. People, even family, can be tiring, but don't reject going just because of that. You can sleep when you die. 😊
2. Children running back and forth in front of you, can shut down the PD brain. It might take several seconds or even minutes to re-boot. But always try again.
3. Power chairs don't like rain. Keep a plastic bag handy (in purse or car) and slip it over the joy stick control. Make sure it is large enough to accommodate the hand of the user as well as the chair arm and controller.
4. When travelling to different homes, take along portable ramps in case there are steps up to the front door. If steps are too steep for a ramp, make sure you also have canes, walkers, or other helps that can get you up the the house. Bring all the helps you might use at different times of the night. Depending on the meds and the circumstance, you may need all of them.
5. Call ahead to restaurants if that's where the party is. Make sure there is adequate parking, a place for power chair or walker, and that reservations can be made ahead. We try to make a trial run to the place if it is a new venue for us. That way we are not surprised by anything the night of the shin-dig.
6. More people equals more stress. PD symptoms get worse when you're stressed. Slow down, be patient and do your best to join in.
7. Always have a disposable urinal in the car (for females, add an adapter). I keep one for Jamey, in a fabric pouch, and slip it into a tote bag or large purse so it is handy. You never know what kind of facilities you might have. Sometimes even getting into the bathroom is tricky.
8. People are usually very understanding (at least with family, hopefully). But most people will never be able to fully understand what you're going through. So, explain as best you can, but don't get upset if they don't "get it". It doesn't have anything to do with how they feel about you.
9. Try and participate as best you can. If your loved one can interpret for you, or include you when it gets hard to chime in, let them take the lead.
10. Speak loudly and project. Don't be embarrassed to ask for help.
11. Don't stop doing things because they're difficult. It's easy to become a hermit, but not at all beneficial.
If everything were easy, it wouldn't
be as rewarding!
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